Inspired by my friend Mike Woods who writes an excellent blog http://rulesfoolsandwisemen.blogspot.co.uk/ I have been thinking of writing my own blog for some time.
To date, despite my best intentions, I have so far not managed to get round to it.
Now I have no excuse.
22q Awareness Days is a campaign which aims to enhance the general public knowledge of the genetic condition 22q11.2 Deletion Syndrome over a period of 22 consecutive days from 27th April 2014.
https://twitter.com/search?src=typd&q=%2322qAwarenessDays https://www.facebook.com/22qAwarenessDays
22q11.2DS is believed to be the second most common genetic condition after Down's Syndrome.
Most people know something of Down's Syndrome but very few have ever heard of 22q11.2 DS.
This is a condition which affects my daughter Sarah and I thought it would be a good idea to share my family's experience of 22q11.2DS and hopefully bring knowledge of this condition to a wider audience.
My objective is to write a post each day for the next 22 days and I hope you will join me on this journey.
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